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About 'georgetown university hospital staff directory'|The end of a long fight, the beginning of a new bigger one







About 'georgetown university hospital staff directory'|The end of a long fight, the beginning of a new bigger one








If               you               suffer               from               Crohn's               disease               and               live               in               the               metropolitan               Washington,               DC,               area,               you're               lucky.

Few               other               areas               of               the               country               offer               opportunities               for               so               much               Crohn's               patient               support.

The               be-all               and               end-all               of               local               Crohn's               resources               is               the               Greater               Washington               DC/Virginia               chapter               of               the               Crohn's               Colitis               Foundation               of               America               (CCFA).

Most               locals               interpret               the               DC               metropolitan               area               to               include               the               District               as               well               as               an               arc               with               about               a               35-mile               radius               into               Virginia               and               Maryland.

For               this               reason,               the               majority               of               Maryland               Crohn's               patients               would               probably               find               the               DC/Virginia               chapter               convenient.

Those               a               bit               further               out               will               want               to               check               out               the               Maryland/Southern               Delaware               chapter.
               The               DC/Virginia               chapter               began               in               the               mid               1980s.

I               was               privileged               to               be               a               founding               member               and               watch               it               grow.

If               you               don't               have               easy               access               to               a               computer,               the               office               is               located               in               Fairfax,               VA.

You               can               give               the               staff               a               call               at               703-865-6130               or               at               877-807-5271.
               Crohn's               patient               education               programs               alternate               among               sites               (typically               hospitals)               in               the               District,               Virginia               and               Maryland.

The               Web               site               lists               a               variety               of               upcoming               Crohn's-related               activities,               among               them               a               picnic               in               May               and               a               Take               Steps               Walk               in               June.
               Not               thrilled               about               attending               Crohn's               patient               education               meetings               or               social               events               when               you're               under               the               weather?

The               DC/Virginia               chapter               site               provides               details               on               the               new               CCFA               endurance               training               program               as               well               as               support               groups.

In               addition               to               a               new               Teen/Buddy               patient               group               now               forming,               existing               support               groups               meet               at               these               locations:
               Northern               Virginia:               Fairfax               Hospital               in               Falls               Church               and               Prince               William               Hospital               in               Manassas
               Maryland:               Holy               Cross               Hospital               in               Silver               Spring
               District               of               Columbia:               Howard               University               Hospital
               Call               the               chapter               or               visit               its               Web               site               for               meeting               times.

Leaders               and               facilitators               are               also               needed               for               support               groups               at               Mary               Washington               Hospital               in               Fredericksburg,               VA;               Warren               Memorial               Hospital               in               Front               Royal,               VA;               Potomac               Hospital               in               Woodbridge,               VA;               and               the               Children's               National               Medical               Center               in               Washington,               DC.
               If               you're               new               to               the               area               or               recently               diagnosed               with               Crohn's,               you'll               want               to               find               a               physician               as               quickly               as               possible.

While               I've               lived               in               the               DC               area               since               1980               and               know               most               of               the               local               gastroenterologists,               your               choice               of               physician               is               realistically               dictated               by               your               health               insurance,               if               you               have               any.
               Crohn's               patients               in               the               metropolitan               DC               area               are               blessed               with               many               fine               practitioners               and               facilities.

Beyond               insurance               considerations,               your               choice               of               a               doctor               basically               depends               on               whether               you               feel               more               comfortable               in               a               large               practice               or               a               small               one.

For               example,               if               you               choose               a               practice               with               multiple               gastroenterologists,               when               you're               hospitalized,               expect               to               see               whichever               one               is               assigned               to               cover               that               hospital               on               that               day.

The               next               day,               you'll               probably               receive               a               visit               from               one               of               the               other               partners.
               The               trade-off               for               choosing               a               solo               practitioner               and               getting               more               personalized               attention               is               potential               frustration               over               the               doctor's               unavailability               at               times.

Find               out               who               will               cover               if               you               have               an               emergency               and               the               physician               is               treating               someone               at               another               hospital               or               is               on               vacation.
               Thus               far,               I've               been               treated               at               Inova               Fairfax,               Inova               Fair               Oaks               and               Reston               Hospital.

While               I               preferred               having               surgery               at               Fairfax               in               Falls               Church,               again,               where               you               go               will               more               than               likely               be               dictated               by               your               medical               insurance               and               where               your               gastroenterologist               practices.

Note               that               the               trend               is               for               practices               to               own               their               own               labs               to               perform               endoscopic               work.

Before               agreeing               to               use               one               of               these               instead               of               a               hospital               or               free-standing               radiology               facility,               make               sure               your               insurance               will               cover               it.
               Based               on               other               Crohn's               patients'               experiences,               I               would               choose               Georgetown               University               Hospital               in               the               District               and               Holy               Cross               in               Maryland               for               treatment.
               If               you're               looking               for               sitz               bath               equipment               or               your               very               own               Crohn's               doughnut               pillow               to               ease               certain               sore               parts,               you               have               two               excellent               choices.

Some               of               the               CVS               pharmacies               in               the               metropolitan               area               stock               hospital-type               supplies               such               as               these.

The               easiest               way               to               find               them               is               to               check               the               telephone               directory               for               a               few               in               your               area,               call               to               find               out               if               they               carry               what               you               need               and               ask               if               they               deliver               to               your               address.
               My               favorite               pharmacy               for               getting               exotic               Crohn's               prescriptions               or               equipment               is               Vienna               Rexall               Drug.

This               very               accommodating               pharmacy               is               located               at               150               Maple               Ave               W.

in               Vienna,               VA.

You               can               call               the               helpful               folks               there               at               703-938-7111.

If               they               don't               have               what               you               need               to               help               you               handle               Crohn's,               they'll               order               it               if               at               all               possible.
               Over               the               years,               I've               undergone               a               number               of               Crohn's               surgeries.

At               times,               I've               had               to               exist               for               weeks               on               Ensure.

You               can               buy               this               liquid               food               at               almost               any               pharmacy,               supermarket               or               Costco.

However,               if               you               want               a               flavor               other               than               vanilla               or               chocolate,               try               a               Giant               supermarket.

Butter               pecan               is               my               hands-down               favorite.
               My               favorite               Chron's-friendly               restaurant               in               the               Washington,               DC,               area               is               one               you               might               least               expect.

I               have               found               I               can               always               eat               at               the               Outback               Steakhouse.

When               you               arrive,               ask               for               the               manager,               who               is               usually               very               accommodating               as               far               as               special               needs.

Assuming               you've               already               decided               to               skip               the               salad,               you               have               a               number               of               choices               to               make.

Most               managers               will               permit               you               to               order               off               the               children's               menu,               which               is               very               helpful               when               you               can               only               eat               a               limited               quantity               at               one               sitting.

I've               also               found               the               staff               very               reasonable               as               far               as               omitting               sauces               with               lactose               and               permitting               more               digestible               substitutions               for               some               items.
               If               the               kids'               menu               isn't               appealing               and               you               can't               see               spending               the               menu               price               for               an               adult               meal               when               you               can't               eat               it               all               at               one               sitting,               the               staff               is               normally               happy               to               bring               you               just               half               the               entrée               and               serve               the               remainder               already               boxed               to               take               home.






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